Our work Romania Projects Projects in Romania Copaceni – our unique children’s respite and therapy Centre In 2012 members of the Florescu family donated their beautiful country estate, “Copaceni,” to Hospice Casa Sperantei. This generous gift was made to help the thousands of children in Romania suffering from life-limiting illnesses such as muscular dystrophy and cystic fibrosis. The majority of these children do not receive any support from the state and cannot integrate into the school system. Many also struggle to be accepted by society. To help these children and their families we are converting the estate into a unique children’s respite and therapy centre. Some of our children’s summer trips are already being held at Copaceni. Caring for a child with a life-limiting illness impacts on the whole family and the emphasis of our care at Copaceni will be to support the entire family unit. The hospice is opening in April 2018 and will provide:- Who will benefit from Copaceni? There are more than 5,000 children in the Bucharest area alone who would benefit from the Centre. One example is M – a little boy with “glass bones”. The facilities at Copaceni would be ideal to help him and his family. M is from Bucharest. He was diagnosed at birth with imperfect osteogenesis. He was so fragile that his parents could not hold or hug him and his birth itself led to bone fractures. His condition is rare and very little was known about the care and treatment of a child with fragile bones in Romania when he was a baby. M’s parents are devoted to him but his care regime is demanding. Changing a nappy needed at least two people and he could only be fed milk when he was lying on his back. M is now 8, but his height and weight are of a 4 year old. To date he has suffered 15 fractures, some of them needing surgery. His thigh-bone has fractured in the same place on six occasions and he was unable to walk because of the risk of damage to his spine. M has had some treatment in Canada and is recovering from that. But he is one of the exceptions - many children in Romania in his situation would receive little ongoing care which is why the Copaceni facility is so important. The centre could help with his post-op physiotherapy and rehabilitation. Play therapy would give M the chance to relax, give him intellectual stimulation and the chance to interact socially and virtual reality techniques will help with pain control. Finally counsellors would support M’s family.