Hospices of Hope US

Find out about our charity partners in the USA and the work they are doing fundraising for our work providing palliative care services and hospices in Romania, Serbia, Moldova and Albania


Background 

Ryder Albania started work in Tirana in 1993. It was established with support from the Sue Ryder Charity in the UK and still maintains close links with that organisation.

Initially Ryder Albania provided free home care services to terminally ill cancer patients and to the elderly suffering from chronic illness in the capital city. Then in 1996 it extended its services and opened a home care service in Durres, the second largest city in Albania. Today, Ryder Albania’s multidisciplinary teams offer home care services in both cities.  For a while the organisation rented space and was able to provide in-patient services. Sadly, lack of funds during the recession meant that this service had to come to an end.

The Team

The organisation started with two doctors and a nurse in Tirana. It now has two multidisciplinary teams – one in each location. The team in Tirana has three doctors, four nurses and a social worker and the team in Durres has two doctors, three nurses and a social worker.  There is also an administrative support team in place. 

Services

The teams provide free medical care, psychological counselling and assistance with social service issues to patients and their families.  

Impact

The Tirana team cares for approximately fifty patients and the Durres team looks after forty patients.

In the period November 1993 to June 2018 Ryder Albania has cared for around 8,400 patients (4,400 in Tirana and 4,000 in Durres). It has supported approximately 25,200 close family members.

Training and Lobbying

The team in Albania understands the importance of training medical staff and provides training on a national basis. To date, more than 1,200 doctors, nurses and social workers from different parts of the country have been trained by Ryder Albania.

In addition, the hospice established the Albanian Palliative Care Association which is an umbrella association for palliative care providers in the country. As a pioneer of hospice services within Albania, Ryder Albania has taken on a lobbying role to improve the quality of services for patients with terminal illness. This has led to a national strategy on palliative care and the introduction of professional standards in delivering hospice services.

Challenges

Challenges the teams face include:-

  • Working in such a poor country. 32.8% of the population lives under the poverty threshold ($5 a day) according to World Bank Statistics
  • The public health system is struggling to come up with a solution to the country’s needs
  • Corruption in the country is commonplace
  • Opioid availability – only 75% of the WHO recommended drugs can be prescribed in Albania
  • Opioids are only available to oncology patients
  • No pediatric opioids are available – medical professionals are faced with reducing adult doses
  • A general fear of using opioids within the country
  • Almost no funding for palliative care from the state health care system – the only contribution is the reimbursement of the cost for some drugs
  • A reluctance to tell patients their true diagnosis

 

Palliative care within the country

As of 2017 there were 12 providers offering palliative care in Albania.  Geographically, coverage is about one third of the country and in terms of actual access this is less than 6%.

State

In 2001 a state palliative care service, the Oncology Home Service, was established and provides home care services to cancer patients who are referred from the National Oncology Center in Tirana. For many years this was the only state provision.

As of 2015 there are palliative care units in eight regional hospitals. These units are based on a model developed by Ryder Albania in Durres.

There is no specific provision for pediatric palliative care in the country although the National Oncology Center provides some in-patient palliative care advice.

Palliative care is recognized as a basic human right and the legislative framework is in place but lack of finance means that implementation of policy is challenging.

NGOs

In addition to Ryder Albania there are two other main NGO providers. The organisations work together and are members of the National Association for Palliative Care which campaigns for the development of palliative care in the country.